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National Rheumatoid Arthritis Society (NRAS)

We are the only patient led organisation dedicated to supporting, educating, informing and advocating for the estimated 690,000 people living with rheumatoid arthritis (RA) and 12,000 children and young people living with juvenile idiopathic arthritis (JIA) in the UK as well as their families, carers and the healthcare professionals who care for them.

Website: http://www.nras.org.uk

Please note that the NRAS Group Meetings for 2015 are now finished. The next ones will be held in the week commencing 4 January 2016. We hope to see you then ! ‪#‎nrasgroups‬

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NRAS - National Rheumatoid Arthritis Society
http://www.nras.org.uk
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Join us at our Annual Christmas Carol Concert tomorrow at All Saints' Church in Maidenhead!

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NRAS - National Rheumatoid Arthritis Society
http://www.nras.org.uk
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It's not too late to get your Christmas Cards ! You can order them online or give us a call on 0845 458 3969 and we can place the order for you. Hurry while stocks last!

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Here's a list of our group meetings that are happening this week! Remember, you don't have to be a member to come along. Feel free to bring your family or friends.

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NRAS - National Rheumatoid Arthritis Society
http://www.nras.org.uk
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The rheumatology team at Torbay and South Devon NHS Foundation Trust has created some great information videos that we think could be very helpful to you.

The videos are short clips that provide guidance on various DMARDS (Disease-modifying anti-rheumatic drugs) and also Biologic Drugs. Here's an example of one of their videos that demonstrates how to take oral Methotrexate.

To watch their videos, click below:

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Rheumatology support videos
http://www.torbayandsouthdevon.nhs.uk
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Remember the M & Co Charity Fashion Show that we posted about last week that was organised in Droitwich ?

As it turns out, the event received over 60 people in attendance and a total of £300 was collectively raised on the night, all thanks to the Worcester NRAS Group that organised the event ! We also want to thank everyone that attended.

To read more, or see more pictures from the catwalk show, visit the site below:

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Dedicated followers of fashion raise money for rheumatoid arthritis charity
http://www.cotswoldjournal.co.uk
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Claire Kavanagh
Claire Kavanagh

Looks like a thoroughly glamorous night out!

With an amazing 400 responses so far, we are still looking for more people (with RA) to complete the survey. A leading pharmaceutical company wants to know about your experience of living with RA.

The data collected from the survey will form part of a disease awareness campaign aimed at policy makers, parliamentarians and medical professional bodies, as well as the general public.

http://surveys.comres.co.uk
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Here are the group meetings that are taking place next week. Everyone is welcome to come along !

For full information on our groups please visit our website at www.nras.org.uk/groups

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We have lots of groups meeting next week, everyone is welcome to come along. For full information on our groups please visit our website

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NRAS - National Rheumatoid Arthritis Society
http://www.nras.org.uk
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We still have one guaranteed place left at the London Marathon 2016! Click below for more details.

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NRAS - National Rheumatoid Arthritis Society
http://nras.supportap.fatbeehive.com
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We are looking for people with RA whose disease is not well controlled and yet who do not meet the criteria for biologic drugs.

Is this you? Are you worried about losing your job? Struggling with daily life? We want to hear from you and understand the impact this is having.

Please contact Conn at conn@nras[dot]org[dot]uk

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NRAS - National Rheumatoid Arthritis Society
http://www.nras.org.uk
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We need your help! A leading pharmaceutical company wants to know about your experience of living with RA. The aim of the survey is to explore the experience of those living with RA including perspectives on diagnosis, as well as the level of confidence patients feel they have talking about their condition to their doctor, friend or family.

To take part in the survey visit the website below.

http://surveys.comres.co.uk
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For those of who you are passionate about running, we may have some good news for you!

Due to an unfortunate injury to one of our runners, a place in the London Marathon has just opened up and is now up for grabs.

We ask that you pledge to raise £1800 in sponsorship for the National Rheumatoid Arthritis Society, we have a lot of ideas on how this can be done in our fundraising guide.

To book a place, simply visit http://www.nras.org.uk/events/a0pC0000005KwNPIA0 or call Val on 01628 501547 if you have any questions. ‪#‎LondonMarathon‬

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http://www.nras.org.uk
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Now Halloween and Bonfire night are behind us we can properly start the countdown to Christmas (7 weeks to go!)

It isn't too late to order your NRAS Xmas cards order online at http://www.nras.org.uk/shop/category/Christmas or call on 0845 458 3969 to place your order.

All orders come with free delivery - so what are you waiting for?!

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NRAS - National Rheumatoid Arthritis Society
http://www.nras.org.uk
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If the sad news about Bob Mortimer's heart surgery has you worried you can learn about #RA & cardiovascular risk at

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NRAS - National Rheumatoid Arthritis Society
http://www.nras.org.uk
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Good luck and thank you to Angela who is organising an spooky #Halloween party this evening to raise money to support NRAS. Check out this amazing cake that her husband made for the occasion - this will be being auctioned off on the night!

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Are you based in Manchester? Would you like to help influence how patients are involved in research in Manchester in the future?

If you are interested, join the Centre for Musculoskeletal Research on 24th November 2015, between 2pm-4pm.

Manchester's largest hospitals together with the University of Manchester are working together to develop several large grants to support clinical research in Greater Manchester. Involving patients and the public in the development of these grants is an essential part of the process. Therefore, they would like to invite patient contributors to give their input. They would like you to help with the plans for how patients and the public will be involved in the research. They understand that there are lots of expertise that they can learn from, and hope that this session will provide lots of opportunities to learn from one another.
All travel expenses will be reimbursed and refreshments will be served.

Places are limited so please apply for a place by 30th October 2015 on the website here: https://www.eventbrite.co.uk/e/shaping-research-in-manchest

Please also email ceri.harrop@manchester.ac.uk stating in no more than 3 sentences why you would like to attend this event. If you are successful, you place will be confirm by November 4th 2015.

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Today NICE have released a Final Appraisal Decision (FAD) giving wider access to Abatacept, adalimumab, etanercept and tocilizumab for the treatment of juvenile idiopathic arthritis. Read our response here:

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Juvenile Idiopathic Arthritis
http://www.jia.org.uk
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Free well being & stress management courses for people with long term conditions in Manchester. Find out more.

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Building a Healthy Future
http://manchestermind.org
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We have been working as part of the Fit for Work Coalition to produce 'My Plan for My Life with ...' a new self management tool for people with long term conditions. To find out more and download your copy visit nras.org.uk/news

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NRAS - National Rheumatoid Arthritis Society
http://www.nras.org.uk
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