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Huntington's Disease Association

The Huntington’s Disease Association exists to support people affected by the disease and to provide information and advice to professionals whose task it is to support Huntington’s disease families.

Website: http://hda.org.uk/

The 2016 Adidas half marathon is taking place on the 13th March. If you want to take part you have until the 15th January to sign up:
https://www.adidashalfmarathon.com/how-enter/online-entry/
For help and advice with fundraising please email our Community Fundraiser: events@hda.org.uk

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We held our Christmas Jumper Day today here at Head Office!
There is still time to organise one and raise funds so please get in touch!

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We have secured places in the 2016 Great North Run. If you would like to apply please email events@hda.org.uk

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Good luck to our Community Fundraiser, Hannah who is taking part in the Liverpool Santa Dash for us on Sunday.

Kate Davis,
Head Of Fundraising

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Charles Sabine was interviewed about Gene editing by Fergus Walsh on the Today programme. Listen again at 2 hours and 42 mins
http://www.bbc.co.uk/programmes/b06qkr6d#play
Link to the article: http://www.bbc.co.uk/news/health-34994180

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After the sales of Black Friday and the shopping boom of Cyber Monday - today is #‎GivingTuesday‬, a global day of giving!

For today only, you can raise an increased donation for us when you shop at Notonthehighstreet.com, Toys R Us, Debenhams and more! Simply shop with Give as you Live and you'll raise a free donation for us! https://www.giveasyoulive.com/join/hda

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Support Huntington's Disease Association just by shopping online with Give as you Live
https://www.giveasyoulive.com
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With the start of December a matter of days away why not organise a Christmas Jumper day at your place of work, school or club and raise funds for us? We will be holding ours at Head Office on the 10th. Please contact our Community Fundraiser for a pack form Monday onwards events@hda.org.uk

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On behalf of Lancaster University:

'Researchers at Lancaster University are interested in interviewing people with HD and exploring their views on the issue of assisted dying. This research will contribute to our understanding of this important issue for people with Huntington's disease. Participants must have a confirmed diagnosis of HD, be 18 or over and be able to speak English to a sufficient level to be able to take part in the interviews. If you are interested in finding out more information or taking part, please contact Laurence Regan (l.regan@lancaster.ac.uk, 07508406274).'

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We hope the Spending Review addresses the chronic underfunding of social care #SR2015 #carecrisis

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We would like to wish our patron, Tony Hadley good luck in the jungle while he takes part in this year's I'm A Celebrity Get Me Out Of Here!

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It’s time to get organised so this year why don’t you start your Christmas shopping early and raise money for us when you shop via Give as you Live

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Support Huntington's Disease Association just by shopping online with Give as you Live
https://www.giveasyoulive.com
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Thank you for taking part in ‪#‎giveatoss4HD‬
To donate text CTHD15 £3 or £5 to 70070

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Give a Toss for Huntington's Disease
https://www.youtube.com/
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A chilling read for #Halloween - perfect for scaring your little monsters #reading

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Thank you Storm In a Teacup Gifts - 50p from each purchase will come to the Huntington's Disease Association. Please support if you can.

gifts and homeware both quirky and practical, bargains to be had
http://www.storminateacupgifts.com
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‪#‎giveatoss4HD‬ is now live on our website.

Please watch and share the video and then donate to us. Post a video or selfie with the #giveatoss4HD and text CTHD15 £3 or £5 to 70070

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HDA - HDA News - Give a Toss for Huntington's Disease
http://hda.org.uk
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(1) Toss a coin, 50-50 highlight genetic risk of Huntington's disease

(2) Share it with # GiveAToss4HD

(3) Text CTHD15 to 70070, donate £5

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An update on Ollie's progress walking from John O'Groats to Land's End: He is now in Hebden Bridge and has been walking for 6 weeks. He has walked almost half way. He has raised over £900 for us. He has had some struggles with blisters and the damp irritating his Eczema but he is still on target to reach Lands End in Mid November. Any messages of support, shares or donations would really help to spur him on. Thank you so much!

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Oliver Miller is fundraising on JustGiving for Huntington's Disease Association
https://www.justgiving.com
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