Childrenscover

Children's Heart Federation

Congenital Heart Disease (CHD) is the most common birth defect in the UK. Thousands of babies are born with a heart problem each year and hundreds of children develop a heart condition at some point after birth. The Children’s Heart Federation (CHF) is the leading UK children’s heart charity and the main umbrella body for British CHD charities and voluntary organisations.

Website: http://www.chfed.org.uk/

Thank you to TPO customers for pledging their 10% to Children's Heart Federation.

£414.41 was raised! You guys are making a huge difference.

#TPOGoodness

6 people like this.
Liza Feltrin
Liza Feltrin

Great news!! Bi
g thanks to all TPO supporters!

Claire Kavanagh
Claire Kavanagh

Amazing £414! That's great!

The NHS is linking with dating app Tinder to encourage younger people to consider organ donation. Jamie Laing - 27 years - from 'Made in Chelsea' has signed up to the campaign.

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NHS hooks up with dating app Tinder on organ donations - BBC News
http://www.bbc.co.uk
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CHF CHAMPIONs!

A BIG thank you to David who will be taking part in the Longboarding for Little Hearts fundraiser for CHF on Saturday too!

Massive thank you to Edith who raised a fantastic £300 and came 17th out of 208 children in the Great South Run! Awesome!

Also, a BIG thank you to Louise for holding an awareness event and fundraiser for CHF!
We're so greatly proud of you!

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Another CHF CHAMPION!
Congrats to Gareth for starting fundraising today!
Support Gareth as he raises funds for CHD children and visit his fundraising page:

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Click here to support Gareth
https://www.justgiving.com
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Find out how the US CHD family is raising funds for cutting edge research through united walking!

For more about the Congenital Heart Walk please see:

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Congenital Heart Walk Homepage
http://www.congenitalheartwalk.org
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Barth Syndrome is an extremely rare and serious genetic disorder that affects only boys.
A day after his first Birthday, little Sebastian was formally diagnosed with Barth Syndrome and his mother Laura describes 'How he fought for his life with bravery and determination that humbled us beyond words.'

3 people die in need of a transplant each day in the UK.

Please read Sebastian's story in the Latest News Section of the Barth Syndrome website and their featured interview in The Sunday Telegraph:
www.barthsyndrome.org.uk
Have you signed up to be an organ donor?

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Barth Syndrome Trust - Saving lives through education, advances in treatment and finding a cure for Barth syndrome
http://www.barthsyndrome.org.uk
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CHF is GIVING a BIG hand of THANKS to all our fantastic heart parents and children on this #GivingTuesday!

And thinking about heart children and parents worldwide.

Chris Perez is a US based heart parent and author of Half Heart.Whole Life:an HLHS Dad's blog.

Read Chris' blog at:
http://hlhsdad.com

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Half Heart. Whole Life.
http://hlhsdad.com
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Are you a HEART PARENT and would like to help us improve communicating surgery outcomes of HEART CHILDREN?

We need to hear your ideas on how best to represent a website and its contents.
When? 1-3pm Thursday 10 December 2015
Where? Central London

Compensation for standard travel expenses will be provided, plus an honorarium of £40 will be given to participants.
Please email Christina Pagel with your name, email and phone number at: c.pagel@ucl.ac.uk
Places are limited!

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Still time to get involved in Cardiac Risk in the Young (CRY) Week!

More information at:
www.c-r-y.org/cry-awareness-week

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Don't forget to write to your MP about Atrial Fibrillation (AF) Week 23 - 29 November! Let's make our voices heard! More info at www.atrialfibrillation.org.uk

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Home - Atrial Fibrillation (AFA) - AFA Home
http://www.atrialfibrillation.org.uk
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Supporting World Prematurity Day. Watch BLISS Baby Charity video

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World Prematurity Day 2015
http://www.bliss.org.uk
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#MondayMotivation time! Hope everyone has a positive week!

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Hope everyone has a good end to the working week and have a nice relaxing weekend too! #FridayFeeling

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Interesting article about a portable 'lung' that 'breathes' into patients in need of oxygen - giving a helping hand to those waiting for a transplant?

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Lung patients' on-the-move oxygen lifeline
http://www.dailymail.co.uk
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New report by Bliss on the state of care for premature and sick babies in the UK. Our NHS is an amazing thing, but needs more resources to help our nurses and doctors.

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Services for England's sickest babies are hanging in the balance
http://www.bliss.org.uk
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Efforts underway to reduce the number of operations needed for some heart conditions. Research at the University of Bristol is attempting to use stem cells to create grafts that grow as the recipient grows. Marvels of modern medicine!

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Meet the people who are mending the smallest of broken hearts
http://www.bristolpost.co.uk
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What do you do when a loved one is diagnosed with an illness? Put on a pink tutu of course.

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When his wife was diagnosed with breast cancer, Bob put on a tutu and went straight for the laughs.
http://www.upworthy.com
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The office move is... GO! The CHF office is closed for our move. We'll be up and running on Monday 2nd November. See you on the other side!

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