A BIG thank you to David who will be taking part in the Longboarding for Little Hearts fundraiser for CHF on Saturday too!
Massive thank you to Edith who raised a fantastic £300 and came 17th out of 208 children in the Great South Run! Awesome!
Also, a BIG thank you to Louise for holding an awareness event and fundraiser for CHF!
We're so greatly proud of you!
Another CHF CHAMPION!
Congrats to Gareth for starting fundraising today!
Support Gareth as he raises funds for CHD children and visit his fundraising page:
Find out how the US CHD family is raising funds for cutting edge research through united walking!
For more about the Congenital Heart Walk please see:
Barth Syndrome is an extremely rare and serious genetic disorder that affects only boys.
A day after his first Birthday, little Sebastian was formally diagnosed with Barth Syndrome and his mother Laura describes 'How he fought for his life with bravery and determination that humbled us beyond words.'
3 people die in need of a transplant each day in the UK.
Please read Sebastian's story in the Latest News Section of the Barth Syndrome website and their featured interview in The Sunday Telegraph:
Have you signed up to be an organ donor?
Are you a HEART PARENT and would like to help us improve communicating surgery outcomes of HEART CHILDREN?
We need to hear your ideas on how best to represent a website and its contents.
When? 1-3pm Thursday 10 December 2015
Where? Central London
Compensation for standard travel expenses will be provided, plus an honorarium of £40 will be given to participants.
Please email Christina Pagel with your name, email and phone number at: firstname.lastname@example.org
Places are limited!
Supporting World Prematurity Day. Watch BLISS Baby Charity video
Interesting article about a portable 'lung' that 'breathes' into patients in need of oxygen - giving a helping hand to those waiting for a transplant?
New report by Bliss on the state of care for premature and sick babies in the UK. Our NHS is an amazing thing, but needs more resources to help our nurses and doctors.
Efforts underway to reduce the number of operations needed for some heart conditions. Research at the University of Bristol is attempting to use stem cells to create grafts that grow as the recipient grows. Marvels of modern medicine!
Loving this today! Number 12 possible favourite...
What do you do when a loved one is diagnosed with an illness? Put on a pink tutu of course.
The office move is... GO! The CHF office is closed for our move. We'll be up and running on Monday 2nd November. See you on the other side!